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20/8/2018 0 Comments Sumner MondayNot sure what to say 😔 today 😢 You see the daily Facebook Blogg was what happened to Sumner & the things we spoke about 🙄 so then I'd report his day to you all 🤕 Curtis, Perry, Torrie, & Bay-Hesty went to K2 for fitness training this morning & we had to go to finalise ☀️ Sumners Funeral Arrangement 😢 & then popped into to see Carla Spear & her charity shop window 🤗& sue got a big cuddle from her 💞 Funeral Directors went well & thanks to Anthea Barter & Bill Coates we now have a Video to play during the Reflection part of Sumners Service 😢 Thank you soo much Anthea & Bill 💖 The funeral directors have also been soo helpful & supportive & today we got details for the Webcast with login etc 🙄 A huge thanks to Harriet Maiden for helping us with her contacts for printing up the order of service which we will get in a day or so 🤗 & once again thanks to Trevor Howard for helping us draft the order of service up 💞 Had lunch with kids at home & Then James Joyce & James popped over to start preparing Sumners ☀️ memorial garden 🌻 & John Stephenswatched with intent to finish off the garden once settled 🙄 We have been touched by the posts, messages, calls & gifts 🤗 from many people 💞 unfortunately this still hurts 😢 sooo much 💔 thank you everyone that's reached out to us 💖 to try to help ease the pain of the loss of our dearest Sunshine ☀️ Sumner 💔 Please if you would really like to pay your respects 😔 too Sumner this Friday please contact by on personal message 🙄 Another squash training session for Team Malik 👊 then home for dinner 😔 dinner times are sad without Sumner helping & smiling 😢💔 & I for one always feel guilty having eaten without him 😔 & Suzan hardly eats anything 😢 luckily the children are eating well but that could be to do with they are throwing themselves into their Summer squash training 🙄 Please remember there are 5 ways to help with my treatment costs 🤕 & my family 😍 see links below 🙄 1) Direct Donations http://www.sunshine4sumner.com/ 2) Text: SUMN18 £5 to 70070 3) Just Giving Pages set up to Help My Cause 🤕 Dianes link https://www.justgiving.com/crowdfunding/diane-eagle… Mike & Samis Link https://www.justgiving.com/crowdfunding/walking4sunshine3… 4) Easyfunding https://www.easyfundraising.org.uk/causes/sunshine4sumner/ 5) Riverford (Quoting VegFund16) https://www.riverford.co.uk Sleep safe everyone 😢😢😢 Night night x 💔 x #sunshine4sumner #sumnerjourney 
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19/8/2018 0 Comments Sumner SundaySo none of us could get up this morning 😢 the kids needed to sleep in 🙄 But we didn't, couldn't & wouldn't want to wake up 😢💔 this morning we feel helpless & empty inside 💔 The pain inside us is constant 😔 & we talk & sort things 🙄 But in truth we've lost a huge part of our families journey 💔😢 Did that fing on fb of how a boy would look as a girl 😜 Sumner looked No different 😜 bless him 💖 Sue, Curtis, Perry, Torrie & Bay-Hesty all went to town 3pm ish 😔 coz needed some bits & I stayed home with ☀️ in feeling sooo lonely & lost 💔 When the others got home Mariola Clark popped down with cake, wraps & a fresh loaf that Robert Clark baked for us 💞 Thank You both 😍 & everyone else that's lighting candles & making special places to remember Sumner 🙄 thank you all it helps a little bit 💔 honest 🙄 Tania Rodd we hope that the music against cancer & fundraising went well this afternoon 💞🎼🎵🎶🎶 we really wanted to try to pop down 🙄But truthfully 💔 couldn't faceup to this 😢 We are soo sorry not to pop in for a bit 😢 but we're thankful for what your doing to help us as a ☀️family 💞 On the way home from Spain 🇪🇸 I kept seeing some really weird cloud formations & the weather was really quite something 🙄 can anyone see what I mean or what I saw 🙄 Sami Shelford & Michael South hid 9 rocks yesterday on their walk for Sumner ☀️ Then tried to get dinner ready kids hungry but not Sue & I 😔 truth is we feel sooo guilty eating without ☀️ Sumner there 😢 & when we do were not wanting or enjoying it 🙄 our lives will never ever be the same 😢 without Sumner ☀️  18/8/2018 0 Comments Sumner 1 week Today - We are here with Sumner ☀️ Your Not Alone ?#sunshine4sumner #sumnerjourney 18/8/2018 0 Comments Sumner SaturdayCan't believe that Sumner has gone 😢 This morning Curtis, Perry, Torrie & Bay-Hesty went squash training at K2 👊 After lunch we all decided to be with Sumner at ☀️ 2.15pm & listen to some music that we know he loves 💖 Cheryl Gooden & Aiden popped in 💞 & then aunty Yasmin Malik & aunty Tracy Evans E-d came over this afternoon to help get things ready for when Derek & Julie Smith arrived for dinner together this evening 😍 Everyone helped & all supported each other 💔 Julie made a Sunflower cake to share 🌻 Sumner would have loved this 😍 Today Sami Shelford & Michael South walked just over 18 miles to helps raise funds for Sumners memorial service 😢 Fanx for all your hard work & to everyone 👊 that sponsored them 💖 We still can't sleep properly & understand why we lost Sumner 😢 when we tried our best as s family to help him against DIPG 🤕 Thanks everyone for your kind words, messages, ☀️ cards & flowers 💖 NO more pics of Sumner 🙄 coz I'm sitting here with Sumner at 1.32am & can't quite believe this is all happening to our once strong 👊 & loving family 💔 We are trying to get the Funeral Service together 🙄 & thanks to Trevor Howard for writing up Sumners service order ☀️  17/8/2018 0 Comments Sumner FridaySue & I had to go to the Funeral 😢 Directors this morning to try to finalise Sumners Funeral 😢 Helen & Lucy are all helpful 😍 & between us & Trevor Howard 💞 We really hope that we will be able to give Sumner the send off that he deserves ☀️ they have been amazing trying to help us arrange 😢what we should never ever have to do & that is lay to rest A child 😢 We have tried to set up a Live Stream of Sumners ☀️ Funeral which should go live about 10 minutes before the start 🎤 We will share a link nearer the service 🙄 so all you need to do is Login 🙄 We hope ☀️so it doesn't matter where you are in the world 🌎 you should be able to stop & see Sumners funeral ☀️ We still have not set a date for the celebration of Sumners life as yet 😔so watch this space 🤗 Thanks for all the cards, flowers & support that you are all giving us 💖 On Monday we will finalise Sumners Funeral 😢 arrangements......... so keep updated on here 👊 Tonight there was a very bright star ⭐ just over our house which I tried to get a pic off but it came out red ⭐ Not sure if Sumners having a laugh 😜 Team Malik all got involved over the last couple of days to help decide what will be covered & needed to Sumners Funeral 💔 We also had Sumners Coffin delivered today 😢 ready for us to decorate ☀️ Please remember there are 5 ways to help with my treatment costs 🤕 & my family 😍 see links below 🙄 1) Direct Donations http://www.sunshine4sumner.com/ 2) Text: SUMN18 £5 to 70070 3) Just Giving Pages set up to Help My Cause 🤕 Dianes link https://www.justgiving.com/crowdfunding/diane-eagle… Mike & Samis Link https://www.justgiving.com/crowdfunding/walking4sunshine3… 4) Easyfunding https://www.easyfundraising.org.uk/causes/sunshine4sumner/ 5) Riverford (Quoting VegFund16) https://www.riverford.co.uk Sleep well everyone 😴😴😴 Night night x ❤ x #sunshine4sumner #sumnerjourney  16/8/2018 0 Comments Sumner ThursdayFeeling low today 😢 then got a text poem from Steve Allaspin 💞definitely helped 🙄 fanx Steve 👊 as does all the other comments & messages you all share with us 💕 to help us in the grieving process 💔 Time to open the door to the Funeral Directors 😔 We've had a couple of chats as a family about what we would like to do & say for Sumners funeral 😢💔 arrangements ☀️ & the funeral directors art7ved in a bright yellow car 🚕 good start ☀️ & both ladies Helen & Lucy were very helpful & took time to find out what we might want or need 💞 some 1.5 hours later & we had most things in place 🙄 phew luckily coz team Malik spoke alot to each other over the last few days 😢 We kinda had an idea of what Sumner might like 😍 Watch this space 🙄 unfortunately we are limited for space & for this reason cannot make this first service fully open to the Public & All our amazing supporters 😢 Please we hope that you understand 💔 it hurts us NOT to be able to invite everyone at this stage that was touched by Sumners Battle 🤕 with DIPG 😢 We will in due course release a date for Sumners ☀️ Celebration of Life Ceremony ☀️💕 in due course 🙄 We have sent out personal messages this evening confirming the Funeral date which is as we've said limited to space 😔 if you have not received an invite & would like to attend please contact me by personal 🙄💞message on here & please I'm sure that we may of missed a few people off 😔 but don't be offended if we have 💕 & if you are a Squash 🎾Player coming to the Funeral ☀️ Please Bring your Racket 🎾 😜 Please remember we are trying to make the second ☀️ service as inclusive as possible 💖 After lunch we all sat down as a family to decide on a few other ideas that we need to make as a family 😍 not easy when our Sumner ☀️ is missing 💔 All kids went to K2 for squash squad & mum stayed at home to cook dinner ALL ALONE 😢💔 not good coz 💔 hurting 😢 Bay-Hesty met Matthew Hewitt the current World Deaf Champion 🏆 After a vegetable curry dinner & another family chat re the order of service 🎼🎵🎶🎵 🎤 We as a family really hope to give Sumner the best send off that we can & think he deserves 💖 After his 2 year battle 🤕 Sumners bed lies empty 💔 Another DIPG 🤕 warrior princess called Aubreigh 😢 passed away 😢soo sad 😢 Fanx Célia Pashley for using Sumners logo for a goody bag for your upcoming squash event 🎾 in the USA 🇺🇸 One if Sumners best friends is in Chicago 🇺🇸 on holiday ☀️ but his mum sent a few pics of their holiday ☀️ & wearing their Sunshine4sumner wristbands 💞 & fanx to Harriet Maiden for sorting out the ☀️💖 Sunshine4sumner A4 stickers 💞 soo kind 💖 Sleep tight everyone 😴😴😴 Night night x ❤ x #sunshine4sumner #sumnerjourney  15/8/2018 0 Comments Sumner WednesdayNeeded to get the Funeral plans in 😔 place so a funeral directors has been appointed & Sumners plans are being put into place 🙄
We have found this extremely hard to get on with due to the speed in which Sumner left us 😢💔 We will be trying to have 2 services 💕 one to lay his body to rest & another to have a celebration of ☀️💞 Sumners life ❤ Sue & Torrie Malik tried to take a footprint of Sumner today as a keepsake 😍 Today in the post a PSA Ali Farag signed Squash Shirt for Sumner 🙄 fanx Ali 👊 & we played Sumners Cairo Egypt memory video that Bill Coates produced for us ❤ to Sumner 🙄 Today Stuart Parish & Jo Parish who have raised much funds towards Sumners 💞 alternative treatments 🤕 Managed to come to see team Malik for lunch 💕 Stuart grabbed food on route to share with us & it was good to see them with the children James & Daniel 💕 lunch was great espeacially as Stuart turned his hand to the preparation 😜 This afternoon Curtis, Perry, Torrie & Bay-Hesty wanted to go Squash Training at K2 🎾 Sue popped to see Cheryl Gooden & I had a couple of meetings to gain ideas for Sumners arrangements 😔 Thank you everyone for your continued support of messages, cards, flowers & visits ☀️ during what is a very difficult time for us as a family 💔 We realise that some pics & clips are quite distressing 😢 but life is full of ups & downs 🙄 having shared Sumners journey for nearly 2 years we felt that the DIPG monster had to be seen 😔 yes it's not nice & it hurts soo much 💔 😢 14/8/2018 0 Comments Sumner TuesdayEveryone feels empty & sick inside 😢 But we are trying to deal with our terrible loss 😢 At lunchtime today Sue & I went to Register Sumners passing 😢 for the D-Cert 😔 We walked into the waiting area 🙄 & there are two ladies waiting to 💞 register the births of their newborn 💞 soo lovely but in truth not great timing by us when we are there to do the complete opposite 😢💔 Fanx Karen Johnson for our beautiful collage with our families names in & some other healing words 💞 Today we watched a couple of heart wrenching clips of Sumner 😔 slowly shutting down in terms of his breathing 💔 at the time Sumners dear loving siblings genuinely thought 🙄 that he was just trying to clear his throat 😢 or cough 🤕 Unfortunately the Nature of the Beast that is DIPG 🧠 Brain Tumor was slowly shutting down Sumners vital life functions breathing & heart 😢💔 ""PLEASE ONLY WATCH IF YOU WANT TO AS THIS IS QUITE UPSETTING"" 🙄 We are only sharing to show the horrific nature of Sumners Brain Tumor DIPG 🧠🤕 & the LOVE we have for Sumner our little soldier 😢 There have been some lovely candle lit tributes from around the world & soo many likes, shares & comments of support for our loss 💔 & towards our family 💞 & some flowers from the England Squash 🏴 Team 🤗Thank you ☀️ Again today a steady flow of friends & relatives dropping in cards, flowers, food & condolences to help us up 😔 We're lucky & thankful 💞but seriously wounded 💔 😢 We will try to set a date for Sumners Celebration of Life Service soon 🙄please come if you can & it will be Sunshine4Sumner Shirts or Yellow/Red/Orange ☀️ Colours for sure 👊☀️💞 Please if anyone has any ideas to help us or contacts to really make Sumners send off one to remember 🤗 Please message me Camron on messenger 🙄 ❤ & as Sumner would say..........  13/8/2018 0 Comments Sumner Sunflower MondayAs a family we feel sooo Empty & Lost 💔 Sumners our baby ☀️ We still find we go into see Sumner & talk to him & cuddle him 💞 & to just know that he's safe 😔 We all want him back 😢💔 We really didn't expect Sumner to go so quickly when we took him into the Royal Marsden Hospital on Friday the 10th 😢 this was the earliest day they could carry out Sumners 🧠Radiotherapy 🤕 We really are trying to read & reply to all your 🙄 comments & messages of support & condolences 💞 But as Sue & I read them 🙄 it brings tears to our eyes to read such beautiful quotes, messages & memories 😢 thank you for loving our dear son Sumner ☀️ Today a steady stream of family & friends popped in to pay their respects & share our heartache 💔 We had a Sunflower 🌞 Invasion sent & dropped off by our amazing supporters & friends 💞 Fanx to Kaie Warren for sending Sumner & Team Malik a few gifts 😍 All the way from Georgia 🙄 see pics We still have not set a date to lay Sumner to rest 😔 but hopefully in the next day or so we will have a better idea ☀️ as soon as we know we will share & please try to come if you can 💞 Because without you 🙄 we would never have got this far 😍 Curtis, Perry, Torrie & Bay-Hesty went squash training at K2 👊 but I really didn't want to go 😢 & Sue went to see the doctor 😢 All had dinner this evening with a couple of friends at home 😍 but we are feeling really low & sick 😢😢😢 please this feeling is unbearable 💔😢💔😢💔 Especially when you see Bay-Hesty make a cup of tea & go to sit with Sumner before bed for a comfort chat 💞 before bed 😢  12/8/2018 0 Comments Sumner SundaySue & I couldn't really sleep 😔 crying & wanting Sumner back sooo much 💔3am I found my darling wife Sue sobbing next to Sumner 😢 wanting to ❤restore warmth into him 💔😢
We were hoping to wake up & find that we'd been 🙄 dreaming that Sumner had gone 💔 but he hadn't & it was all just a horrible dream 😢 The whole family has been overwhelmed by messages of support, prayer & condolences 💞 We also had Sumner ready for viewing & people to light a candle to say their goodbyes 😢💔at the house or wherever you were ☀️ We had a lovely steady flow of family & friends visit us to pay their respects to our dearest Sunshine Sumner ☀️ We also gave them the chance to write in a small book their condolences 💔 & many people did so 💞 Thank to Leanne Durrant for bringing over some milk 😜 & Tracey Giblett for bringing over biscuits 🙄 Tracey also dropped off some food for dinner tonight 💞 for us 😢 soo kind 💞 Many people lit their own candles & shared on fb & some with the bears that Suzan Malik has made to help us raise funds 🤕 Please still support some of Sumners fund raising 💞 friends that will now be doing there fund raising in Sumners Memory 💔 We have genuinly had soo much support & messages from you all on Sumners Daily Facebook Blog 💕 it's soo kind & reassuring 🙄 & Trevor Howard has offered to take Sumners Service at the time to be confirmed for the Funeral 🙄 Sumner has remained very peaceful & we thank you all for taking the time to either visit or do you own tribute or candle ☀️ shared on here 💞 We are feeling soo sad at the extremely quick end to Sumners battle with DIPG 😢 We had a family dinner together 🙄 but Sumner was not at the table 😢😢😢triple trouble has......... 😢😢 Torrie lit a candle & put on Sumners place matt at the dinner table 💔 beautiful but still sooo hard 😢 & we are sooo sad 😔 & fanx to Jackie & John Stephens for popping in after a long day themselves to help 💞 comfort us 😢 sooo kind 😍 & thank you everyone that's reached out to us today with words, gifts & memories 💞 |
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October 2018
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