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31/12/2017 0 Comments Sumner New Years Eve SundayGot up quite late this morning & went shopping with mum & Torrie 😍 Then home & off to squash squad after lunch before K2 closes 💪 even though my've got a cold my trained really well 🌞 see pic's & clips 🙄 & managed to have a sauna 🤗 Then home for an organic roast dinner with my aunty Yasmin Malik & my cousins 😍 such fun & watched a family film called The Awakening 😜 But our family really want to thank all of you ❤ for your Donations that helped me get on the CED Infusions Trial at the Harley Street Clinic 🤕 which cost us lots of money 😢 & without you 😢 my would never have been able to go on this 🤕sooo thank you everyone 😍 sooo much ❤ Dad & Mum are saying that 2017 has been a tough 🤕 year for us as a family 😢 Physically 💪, Mentally 🤕 & Emotionally 💔 But without you all liking, sharing, donating & commenting 🙄 we would never have got through it 😢 So thank you sooo much everyone 😍 & along the way we have made some amazing special memories 🙄 with your help 😍 fanx 🌞 & we are sooo proud of Curtis Malik, Perry Malik, Torrie Malik Bailey, Heston & of course Sumner 🤕 our little DIPG Warrior 🤕 With Much Love to you all From Team Malik ❤ Happy New Year to you All 😜 family, friends & strangers ❤
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30/12/2017 0 Comments Sumner SaturdayCurtis, mum & dad had to get up early this morning 🙄 so that they could collect 2 BMWs from Chandlers BMW Group 💪 to help us out until our car is sorted 😢luckily dad's friend has helped us out 😍 to make sure that team Malik can get to the British Junior Open in Birmingham 🏆 Then all had lunch at home 😍 then off to K2 for Squash training 💪 My did quite well today but got a cold 😢 so towards the end of my session my went for a sauna 🌞 Then all home to get sorted for aunty Yasmin Malik & Cheryl Gooden to pop over for dinner tonight 😍 it was good fun 😜 & Aiden gabe mum & dad a really special Christmas Gift 😍 fanx ❤ see pics 🙄 Everyone had a great time singing, dancing doing back flips & playing the piano 🌞 Such a fun evening everyone & even though my felt ill 🤕 it was lovely to see you all ❤ Don't habe to get up early tomoz 🙄 so hopefully van shakemy cold 🤕 Please remember the DIPG PETITION https://petition.parliament.uk/petitions/200017    26/12/2017 0 Comments Sumner Boxing DayUp for 9am then off Squash Training for a couple of hours 💪 coz Team Malik have the BJO coming up 🏆 After squash home to see uncle Michael Shipton he popped in to see us 😍 then aunty Sara Salmon & uncle Jon Salmon popped in as well 😍 was good to see everyone & their dog Georgi 🤗 Then aunty Yasmin Malik & aunty Tracy Evans-davies turned up for dinner with their families 🌞 so good to see everyone 😍 Then mum & dad carried on cooking the Boxing Day Dinner 😍 for all of us 🙄 & Tracy made 3 different deserts 😍 see pics 🙄 Then everyone wanted to watch a family film called the Equalizer 💪🤕😜 Aunty Tracy got me a big Monkey cuggly toy 🎅 & gave us all a goodie bag 🎅 Royal Marsden Hospital appointment tomoz 🤕 Thanks for all the Christmas messages 🎅 my've had a really good Christmas 🎅with my family ❤ 25/12/2017 0 Comments Sumner Christmas Day 2017Ummm Torrie & Curtis up first 🎅but Curtis went for a run & Torrie was excited 🎅 Then all opened our Santa Christmas Stockings 🎅 then the Santa 🎅 presents under the real tree 🌲 sooo many & was fun opening 😍 Then my aunty Yasmin Malik & cousins all turned up at 11am to help & start our family celebrations 🎅 see pics 🙄 Coz of a huge Christmas Dinner mum & dad timed it for 3pm 🎅 including salmon starters then the roast Turkey & a the usual trimmings ❤ After dinner we all.open our family presents to each other 😍 such fun as sometimes there are joke gifts involved 🤣🎅🤣 Then an extra set of gifts this year from Derek & Julie Smith to us all 🎅 sooo kind & generous again Julie ❤ fanx sooo much 😍 Then my love playing Rapido with my family 😍 dad is compare & we are split into 3 teams 😜 such fun trying to make & guess what's being scupled 😜 Then all sat down to fall asleep 😴 or watch 🙄 a family film or two 🎅 My love seeing my family especially at Christmas time 🎅 Hope that you all had great Christmas 🎅 days like us today 🎅 & thank you everyone for making ours sooo special 😍 Got it all to do again tomoz as aunty Tracy Evans-davies is popping in for dinner 🎅 But squash training first thing in the morning 💪 as all 6 of Team Malik 🌞 have the British Junior Open coming up soon 🏆         24/12/2017 0 Comments Sumner Christmas Eve SundayMy stayed in bed but Curtis & Perry went training again early 💪 Then my had the chance to go & help mum with some last minute 🎅 shopping 🙄 The others were going squash training at K2 💪 so my got a rest day 🙄 but really wanted to help mum 😍 & my helped mum lots today 😍 Please remember the DIPG PETITION https://petition.parliament.uk/petitions/200017 As only 19,000 signed so far 😢 Mum & Dad want to thank everyone for your Help, Support & Donations 🤕 Without this Sumner may not have made it to this Christmas 🎅 we are going through sooo much as a family 🙄 & without this extra support who knows what this Christmas Eve would have been like 🎅 We've met many new people that have helped us 😍 & some that we've known for a long time 🙄 Aunty Yasmin Malik & my cousins came for dinner tonight Chilli, Rice & Takha Dhall one of my favourites ❤ All had to wear Christmas Jumpers 🎅 Then they are all back for Christmas Dinner tomoz 🎅 Torrie made another Christmas Cake 🎅 & my left Santa & his Reindeer some treats 🎅😍 Team Malik would like to wish everyone a very Happy & Loving Christmas 🎅 & thank you all sooo much for your continued help & understanding 😍 23/12/2017 0 Comments Sumner SaturdayGot a sleep in this morning after my busy Christmas 🎅 trip up to London 🎅 Curtis & Perry went to the gym this morning 💪 mum & dad went shopping 🎅 Mum also got her haircut 🙄 & dad paid 😜 Also both did a few last bits of Christmas 🎅 shopping 🌲 Them all had a light lunch 😍 then off to squash training at K2 💪 Then home to see aunty Yasmin Malik & family for dinner & a family film or two 😍some watched 🙄 some slept 😴 Another dipg 🤕 warrior called Brison 😢 has gone. 😢 Only 2 more sleeps 🎅& all enjoyed watching A Christmas Carol together 🎅 Thanks to DP for yet another sizable donation towards my treatment fund 🤕sooo kind 😍 hopefully see you in Feb 🌞 My got the theory if we go to bed earlier Christmas 🎅 might come quicker 🙄 Also not seen a few friends & family for a long time 😢 15/12/2017 0 Comments Sumner FridaySchool today for me 🌞 & my managed a full day. 💪 Riverford Organic Veg & meat box came as ever 🌞 fanx 🤕 Good job my did coz got 6 certificates for attitude to learning 🌞 so cool Then my had a short go at squash squad at K2 with the others 🙄 after school 🤕 Went well but my back is still a bit tight 🤕 after my opp 🤕 It was my cousins Saadi Malik birthday so dad & Curtis helped him to celebrate 🎂 My also finished my muffin cakes off at school 🎂 Curtis is having trouble being able to use the Squash Courts at the Pakistan 🇵🇰 Squash Open 🙄 seems like they ate trying to limit 🙄 foreign players practice time 🎾 leading up to the tournament 😜 Luckily our uncle Muhammad Nisar Ahmad found a couple of alternative practice courts 🇵🇰 Another DIPG 🤕 warrior princess has gone 😢 called Brinley 😢 sooo sad 😢 Dad's been feeling a bit ill out there & has found a pic of us 6 children from about 6 years ago 😍 & the revrnd Sarah win the guess the name if the bear competition that my aunty Tracy Evans-davies held to help raise £100 towards my treatment fund 🤕 fanx 😍 Dad & Curtis met other family members out in Pakistan 🇵🇰 looks like fun out there 🌞 they all drive like my dad out there 😜 14/12/2017 0 Comments Sumner ThursdayNo school for me again today 🙄 but spent it having fun 🌞 Tracey Giblett popped in to collect a keepsake bear than mum made for her 😍 Then my was making some muffin cakes & Caroline Davey-Miles joined in 😜 that was fun then it was already time to collect the others from school then go to squash 🎾 No Curtis as he's in Pakistan 🇵🇰 getting ready to play in the qualifying rounds of Pakistan Squash Open 🏆 But visiting family out there along the way 😍 see lunch & dinner pics 🙄 Instead of squash training 🤕 as not quite fit yet 😢 my went with mum to see Aiden & Cheryl Gooden for a couple of more fun hours 😍 Then it was back to K2 to watch Perry & Torrie in the men's team match 💪 go Torrie 😜 Tuna pasta for my dinner tonight 😍 13/12/2017 0 Comments Sumner WednesdayNo school today as got my Hospital appointment 🤕 Others went to school & Perry was covering Curtis's coaching at the Weald 🙄 & fanx to Ray Collins 😍 for picking him up & dropping him to the Weald 💪 Luckily aunty Yasmin Malik came with us to the Royal Marsden Hospital 🤕 Curtis & dad seem to be enjoying family meets & treats 😍 sooo lucky to be out there 🇵🇰 When my got to the hospital they removed my dressing 🙄 & mum says it didn't look as bad as we thought it might 😜 My had fun with aunty Yasmin 😜 & the RMH are offering a trial study called 🙄 Pomalidomide Phase II trial 🤕 mum & dad have to read through a 20 odd page document explaining all about the procedure 🤕 & of course my got to have tests 🙄 to see if my qualify 😜 They've sent it in an email to dad already 🙄 So watch this space 🙄 Torrie made another Christmas &dinner was chicken with Sweet corn & rice 😍fanx mum ❤ 3/12/2017 0 Comments Sumner Great Escape SundayMy didn't sleep well again 🙄 nor did mum coz it was sooo noisy in my ward 😜 Dad came up with Curtis, Perry & Torrie 🌞 to collect us & had dropped Bay-Hesty off to go to Aspire Squash Squad 💪 fanx Rob Greengrass for taking them 🤗 At first the hospital didn't want to hurry to release me 😢 they said that my needed to see the Physiotherapist 🤕 but thete was only an oncall one available 🙄 so couldn't guarantee if & when 🤕 so dad said after doctors rounds that we'd be leaving at 12.30 at the latest even if my hadn't seen the Physio 🤕 But that worked well as the Physio came at 11.45am yaay & gave me the all clear 🌞 to go home 🙄 All sooo glad coz didn't sleep well there & my best with my family at home 🌞 So the escape began but my felt a bit sick when going home 😢 coz there's sooo many speed bumps up that way 😜 made my back hurt & felt sick 😢 Finally got home after about an hours drive 🙄 Then dad Curtis, Perry & Torrie went for a training session at k2 💪 then collected Bay-Hesty 🌞 Mum cooked a Sunday roast & all had dinner together 🤗 soo glad to be home 😍 Fanx for all the comments of well wishes & support ❤    |
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October 2018
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