Sumner Sleepy Thursday 😴🤕
My had breakfast in bed fanx to Bay-Hesty 😍 
But my can't get up coz sooo tired 😢 My port is looking better 🤕 & when my was in hospital 🤕 my made some crafty fings for Bay-Hesty & Torrie 🙄see pic's 🙄
Finally did 🙄 Then my had to go & see my kinesiologist 🤕 fell asleep 😴
Then my went to see Samantha Doyle at Fountain Therapies for some pro-biotics & Reiki 🤕 fell asleep again 😴 sorry Sam 😢
Then home & fell asleep 😴
Then went to k2 for squash 💪 & fell asleep 😴 
Mum & dad got a personal donation & a really kind note 😢 see pic's coz the family didn't want mentioning 😢 your are sooo kind & you'll know who you are ❤ xx thank you 😍
After we went home for dinner 😍 mum cooked peppers onions chicken & homemade organic chips ❤ My didn't eat it all though coz fell asleep again 😴 
Then another surprise for us from a very lovely kind family 😍 see pic's 🙄 
Thank you sooo much Derek & Julie Smith for the Waitrose food hamper packed with organic goodies 😍 especially the strawberries 🍓4🍓sumner🍓 made mum 😢 ❤ xx 
After dinner Bay-Hesty & me went to play in the garden 🙄 was fun 🙄
Another DIPG warrior princess called kayla has lost her battle 🤕😢 
But my still sooo tired 😴 & sad 😢
Dad won an award tonight at the Crawley Squash Club AGM 💪😊 more than he can do playing 🙄 lol also Crawley Squash Club made a donation towards my treatment fund 🤕 that they raised during the Club Handicap Squash Competition 💪😍
Dad says that there are soo many lovely kind people out there 😢 that are & have been helping us 😍 
Thank you sooo much everyone ❤
Please remember there's 3 ways to help me immediately as follows 🤕😢🙄
1) Direct Donations 🙄
http://www.sunshine4sumner.com/
2) Just Giving Page 🙄
https://www.justgiving.com/crowd…/Sunshine4SumnerInfusions2…
3) By Registering your online purchases it will donate when you shop & costs you nothing 🙄
https://www.easyfundraising.org.uk/causes/sunshine4sumner/
Sleep tight everyone 😴😴😴
Night night x ❤ x 
#sunshine4sumner 
#sumnerjourney

Sumner Wednesday 🤕
My got up at 10  😴 Coz soo tired 🤕
All the others went to school & squash today 🙄
But not me coz my sooo tired & my vision is fussy & blurry 😢🤕 My left side is ok ish & not as bad as previous infusions 🤕
So hopefully my will recovery quicker this time 🤕 My got ready to try to go to squash but couldn't in the end 😢 
Went with dad to collect Perry Malik  Torrie Malik & then Bay-Hesty from school & my got to meet Kiera who wished me to get well 🤕 & that mum & her would make donation to my Just Giving Page later 🤕 fanx 😍x 😍x 
Also my squash buddy Sam Sypher won £5 from a crisp packet at a school cricket match 💪 & has said that he'll put it in my treatment fund 🤕😍 fanx Sam 😊
Thank you to Shyara Cheesmur for running her yoga classes on a Monday & donating 50% towards my treatment fund 🤕 fanx x 😍
Perry & dad had a squash team match tonight 💪 don't ask 🙄
Gone to bed at 8.15 tonight coz still very tired 😢
Please remember there's 3 ways to help me immediately as follows 🤕😢🙄
1) Direct Donations 🙄
http://www.sunshine4sumner.com/
2) Just Giving Page 🙄
https://www.justgiving.com/crowd…/Sunshine4SumnerInfusions2…
3) By Registering your online purchases it will donate when you shop & costs you nothing 🙄
https://www.easyfundraising.org.uk/causes/sunshine4sumner/
Sweet dreams everyone 😴😴😴
Night night x ❤ x 
#sunshine4sumner 
#sumnerjourney

Sumner 5th Infusion Tuesday 🤕
Lots of waiting around 🤕 but finally got to ward for day 2 infusion 🙄 They got 3.13ml 🤕 add that to yesterday's 4.8ml makes a total of 7.93mls 🤕let's hope that blasts my dipg tumor  💪 away forever 🤕
Another DIPG warrior princess called Ellayna lost her battle 🤕😢 Sooo unfair 😢 
Today Amir Mehrkar popped into the Harley Street Clinic to see me especially as he'd raised £300 running around the Isle of Wight 💪 to help raise funds towards my treatment fund 😍 fanx Amir it was great talking with you 🙄
Today my family did squash as well as exams 🙄 Luckily Dr Zacharoulis let me go home tonight & my got a cab from the hospital to the Wimbledon R&F Club 🙄 where we watched Curtis playing a Surrey Div 1 team match 😊
My aunty Tracy Evans-davies came to visit me today & came to watch the match as well 😍 fanx for playing connect4 with me today 😀 & helping me with the craft fings ❤ 
Sooo tired 😴 & my head feels fuzzy & my eyes not great 🤕😢 
My don't like being ill 😢 
Mum met Ted Baker of London when my was having MRI scan 🤕 but forgot to squeeze him for some monies towards my treatment 🙄 
Oh well 🙄 Off to bed as very tearful 😢 & tired 😴
Please remember there's 3 ways to help me immediately as follows 🤕😢🙄
1) Direct Donations 🙄
http://www.sunshine4sumner.com/
2) Just Giving Page 🙄
https://www.justgiving.com/crowd…/Sunshine4SumnerInfusions2…
3) By Registering your online purchases it will donate when you shop & costs you nothing 🙄
https://www.easyfundraising.org.uk/causes/sunshine4sumner/
Sleep well everyone 😴😴😴
Night night x ❤ x 
#sunshine4sumner 
#sumnerjourney

Sumner 5th Infusion Monday 🤕
Up at 5.15am 😴 to get a 6.10am train 🚂
No seats 🙄
Bay-Hesty went to Jacobs house to help dad with school runs 🙄 fanx Sarah Ellis & James for helping dad be in 3 places at once 😍 
When my got there 🤕 my got to meet a therapy dog 😍 & made my own sunshine4sumner money boot box 😊
Then MRI scan 🤕 ................. 🙄
Dr Zacharoulis phoned dad to explain their findings 🤕 
So the the tumor is stable 🤕 It's not spread & it's possible that my got a port infection 😢 Still not 100% sure though 🤕 
Then aunty Yasmin Malik & Leonie Harris came to see me with some organic strawberries 🍓🍓Yaay fanx 🍓🍓
My got 4.8ml of infusion today 🤕 My left side was OK but my eyes were not good 🙈 & my very tired 😴 
Two more DIPG warriors Antonio & An'Bria lost their battles 😢😢 so sad 😢
Dad's thinking of getting all our hands put in a cast as a keepsake 🙄 in a frame 🙄
My missed Mon squash squad today 😢 But the others went 💪 hopefully back training by Wednesday or Thursday 💪😊
Finally got moved up to a ward bed for the night but mum says the staff are are bit grumpy 🙄
Please remember there's 3 ways to help me immediately as follows 🤕😢🙄
1) Direct Donations 🙄
http://www.sunshine4sumner.com/
2) Just Giving Page 🙄
https://www.justgiving.com/crowd…/Sunshine4SumnerInfusions2…
3) By Registering your online purchases it will donate when you shop & costs you nothing 🙄
https://www.easyfundraising.org.uk/causes/sunshine4sumner/
Sleep tight everyone 😴😴😴
Night night x ❤ x
#sunshine4sumner 
#sumnerjourney

Sumner Sunday 🤕
Got up first this morning 😊 made my own breakfast 🙄 
Then my had to go back to Brighton hospital for Antibiotics & Steroid infusion 🤕 
Luckily Bay-Hesty came with me & dad 😍 
We saw lots of minis driving down 😕 But this took longer coz of all the little cars.
When my got to hospital dad got an email poem from Graham Stevenson 💪see pic's 😊
After infusion they took my cannula out 🤕 but my still need the meds 😢My glad Bay-Hesty cane it was more fun 😊 see pic's  🙄
After hospital we set off to watch a squash team that Curtis was playing in at the London Squash Festival at the Bexley Club 💪😊 
Team lost the final 😢 but Curtis won 💪
Another of my friends called ninja Josh 😊 mum Anisa Charania made a collage of some pics of me & Bish Bash Josh 😍 Soo cool fanx x 
Then a nice surprise 😊 especially when we got to Fort Raj for our curry buffet 👳 
Dad had invited Julie Smith & Derek to dinner as a way for us all to meet 😍& to treat them 👳 but Julie & Derek had other ideas 🙄 Ummm!
My invited them to dinner one Saturday 😍 & we got a flower & some fresh fruit from them ❤ sooo kind & really pleased to meet them 😍
Off to bed early as my got to be up by 5.30am tomoz to go up to London for CED Treatment 🤕😢 
Let's hope for good news dad says 😊🤕
Please remember there's 3 ways to help me immediately as follows 🤕😢🙄
1) Direct Donations 🙄
http://www.sunshine4sumner.com/
2) Just Giving Page 🙄
https://www.justgiving.com/crowd…/Sunshine4SumnerInfusions2…
3) By Registering your online purchases it will donate when you shop & costs you nothing 🙄
https://www.easyfundraising.org.uk/causes/sunshine4sumner/
Sleep well everyone 😴😴😴
Night night x ❤ x 
#sunshine4sumner 
#sumnerjourney

Sumner Saturday 🤕
Hopefully going home today 🙄
Nice surprise coz dad came to hospital with Perry, Torrie & Bay-Hesty 😍 & dropped off the keys & some clothes 🙄
They didn't stay long coz all 4 were playing in the Lewes Junior Squash Open 💪 
Unfortunately 3 of them got to the final but all lost their finals 😢 so Perry, Torrie & Bailey came 2nd & Heston was 5th 
My think it's quite good especially after the week we've had as a family 🤕😢 
Finally my was allowed home 😊 but got to go in tomoz for cannula infusion of antibiotics 🤕 My was lucky that Julie Ogg came to pick mum & me up & take us home today 😍 fanx xx 
Curtis was playing in the London Squash Festival at the Bexley Club 🙄 
Fanx to Nic Davies for holding a Sumner fund donation box at the squash event 🤕 which manged to raise £80 😍 fanx everyone that donated ❤
A squash friend called Sè aged 11 from Jersey has offered to cut off his long hair on the 3rd of June to raise monies for my treatment fund 🤕 Sooo cool Sè 💪😍 fanx ❤ see dad's fb timeline 🙄
Tonight we had lasagne, Salad, Chips & French bread 😍 mum used the meat bolognaise sauce that Tracey Giblett made for us ❤ & my aunty Yasmin Malik came for dinner with my cousins 🙄
My seeing double most of the day & finding it hard to focus 😢 on fings 🤕
After dinner we watched a family film 🙄 but my went to bed half way through 😴 Soo tired 😢
My sooo fed up & sad 😢 But glad to see my family at home 🙄 
Thank you everyone for all your donations & support 😍 especially the last couple of days 😢🤕
http://www.sunshine4sumner.com/
Sleep tight everyone 😴😴😴
Night night x ❤ x 
#sunshine4sumner 
#sumnerjourney

Sumner HDU Friday 🤕
Dad says sorry for delay in getting a post to you all 😢 But we'd been waiting all day for MRI scan results feedback 🤕 & it's been a bit hectic 😢 🤕
Phewww 🙄 
My felt much better this morning 🤕 see clip's & pic's MRI scan was late but got done in the end 🤕
Mum stayed the night & dad came back this morning & made me laugh 😊 
My had cereal & toast for breakfast 🙄 
No school today coz they wouldn't let me leave 😢 
Lunch wasn't too good 🙄 After lunch my got moved to normal ward 🤕 coz my Sat's were much better 💪😊 the staff have been good 😍 But won't let me go home 😢 
Another dipg warrior princess Lucy lost her battle from Australia 🤕😢
Luckily Kevin Hendon made me a shield as Captain Sumner to help me beat this 💪😍 
fanx Kev who looks grumpy buts quite kind really ❤
My still on all my antibiotics & steroids 😢 But much better 🙄 Finally dad got call about MRI SCAN 🤕 there might be some growth of the tumor 😢But we are still good to continue CED Treatment trial on Monday 🤕 
Dr Zacharoulis was very pleased with MRI especially considering how ill my was yesterday  🤕 We have some chance to still try to beat this Dipg 💪 
My not giving up yet 💪😊 especially with all the love & support that your all giving me 😍 
Fanx everyone that's offered to help mum & dad to help our family 😢🤕😍Sooo kind ❤
Fanx to Tracey Giblett for picking up Curtis from college to help us today 🙄Coz dad couldn't be in 4 places at once  😢 
Tracey also made us a bolognaise sauce for our dinner 😍 But dad's saving it for tomoz 🙄 When my home 😊 
Curtis, Perry, Torrie & Bay-Hesty all made their own dinner tonight from left overs 🙄 
Thanks to Mark Simpson for fitting our water filter 🙄 filters 😍 
Riverfords also delivered another organic Vegetable & Meat hamper 😍 fanx 
Also thanks to Chichester Rackets Club for a donation that they raised on their last PSL team squash match 💪😍 fanx Jack & team 🤕
SORRY my scared everyone by going down hill so fastly 😢🤕 Dad read lots of well wishes to me this morning at breakfast ❤ fanx everyone 😍 
My also had Reiki treatment this afternoon at the hospital 💪😊 My fell asleep 😴 
Then nurse found a spare television for us to watch a Harry Potter Film tonight 🙄
Going to sleep now 🤕 My seeing double still though 😢 We will win this fight 💪😊
http://www.sunshine4sumner.com/
Sweet dreams everyone 😴😴😴
Night night x ❤ x 
#sunshine4sumner 
#sumnerjourney

Sumner Thursday 🤕😢
Hi everyone firstly we'd like to thank everyone for their love, kind words & offers help & support ❤ 
See clip's & pic's 🙄 which you may find slightly upsetting 😢 
Sumner was struggling last night around 11pm he was up & we tried to comfort him but he was happy & sad & very unstable 🤕
We managed to settle him down as we did a few days ago 🤕 hoping that again he'd be ok in the morning 🙄
Unfortunately he wasn't 😢 he couldn't get up or out of bed 🤕
We called a local neighbour who's a doctor & she came to see Sumner & again this wasn't great 😢 We decided then to take him to A&E Haywards Heath 🤕 where we got turned away due to NO paediatric dept 🙄 was told to drive him to the Royal Sussex University Hospital in Brighton 🤕 Luckily they were amazing here & saw him very quickly 🙄
There's a lot more to our experience today 😢 But we'll not bore you with these details 😢 
Sumner was showing observations of 
Pulse 45 bpm Blood pressure 90/50 !
All very low so the staff put Sumner on the following medication either orally or by cannula 🤕 & carried out a CT Scan 🤕
Vancomycin & Ceftrixone both antibiotics 🤕
Dexamethasone Steroids 💪
Levetiracetam for seizures 😢 
We are hoping that his port has an infection & not symptoms of tumor growth 😢 
Sumner will finally be having an MRI scan at 8.30am in the morning ❤
Today has been an absolute nightmare for all of us 😢 you included 😢 We are truly devastated by today especially as Sumner has been doing sooo well 🙄 to top this Curtis & Perry are both revising & sitting exams 🙄 but have both been absolutely amazing 💪 as has Torrie & Bay-Hesty in helping Cook, wash, dry, pack & clean 😍 absolutely sooo proud of them all ❤ 
We really need Super Sumner to beat this 🙄 so please however you feel 🙄keep him in your prayers & thoughts to help 🤕 as most of you are ❤ fanx you aunty Yasmin Malik for coming to see us 😍
Sorry for such Sad News 😢 he's definitely fighting this & when I left the hospital tonight 😢 he was stable with mum by his side 😍 but with no real change to his earlier obs 🤕 
Thank you everyone for your thoughts, kind words & prayers ❤
http://www.sunshine4sumner.com/
Sleep well everyone 😴😴😴 
Night night x ❤ x from Sumner 🤕
#sunshine4sumner 
#sumnerjourney