Sumner Thursday

Sumner Thursday 🤕😢
Hi everyone firstly we'd like to thank everyone for their love, kind words & offers help & support ❤ 
See clip's & pic's 🙄 which you may find slightly upsetting 😢 
Sumner was struggling last night around 11pm he was up & we tried to comfort him but he was happy & sad & very unstable 🤕
We managed to settle him down as we did a few days ago 🤕 hoping that again he'd be ok in the morning 🙄
Unfortunately he wasn't 😢 he couldn't get up or out of bed 🤕
We called a local neighbour who's a doctor & she came to see Sumner & again this wasn't great 😢 We decided then to take him to A&E Haywards Heath 🤕 where we got turned away due to NO paediatric dept 🙄 was told to drive him to the Royal Sussex University Hospital in Brighton 🤕 Luckily they were amazing here & saw him very quickly 🙄
There's a lot more to our experience today 😢 But we'll not bore you with these details 😢 
Sumner was showing observations of 
Pulse 45 bpm Blood pressure 90/50 !
All very low so the staff put Sumner on the following medication either orally or by cannula 🤕 & carried out a CT Scan 🤕
Vancomycin & Ceftrixone both antibiotics 🤕
Dexamethasone Steroids 💪
Levetiracetam for seizures 😢 
We are hoping that his port has an infection & not symptoms of tumor growth 😢 
Sumner will finally be having an MRI scan at 8.30am in the morning ❤
Today has been an absolute nightmare for all of us 😢 you included 😢 We are truly devastated by today especially as Sumner has been doing sooo well 🙄 to top this Curtis & Perry are both revising & sitting exams 🙄 but have both been absolutely amazing 💪 as has Torrie & Bay-Hesty in helping Cook, wash, dry, pack & clean 😍 absolutely sooo proud of them all ❤ 
We really need Super Sumner to beat this 🙄 so please however you feel 🙄keep him in your prayers & thoughts to help 🤕 as most of you are ❤ fanx you aunty Yasmin Malik for coming to see us 😍
Sorry for such Sad News 😢 he's definitely fighting this & when I left the hospital tonight 😢 he was stable with mum by his side 😍 but with no real change to his earlier obs 🤕 
Thank you everyone for your thoughts, kind words & prayers ❤
http://www.sunshine4sumner.com/
Sleep well everyone 😴😴😴 
Night night x ❤ x from Sumner 🤕
#sunshine4sumner 
#sumnerjourney